Monday, July 11, 2016

In Summary

The hospital took 3 weeks to find a bed for Jason. I threatened to go to the media with an expose on Jason's disease and the hospital's lack of interest in treating him.

He got a bed the same day.

Chemo went- almost uneventful. Had a "come to Jesus" with (2) people. Stayed with Jason - left and 27 minutes later he has an episode. security is there explaining to my mother how his items are to be confiscated and he needs to be frisked, stripped and put in a special color gown. 

I probably blew out some eardrums with my tirade on the phone. Needless to say none of that happened. The frustration of ensuring it didn't happen still raises my blood pressure.

Back at the hospital... Jason is moving along. Showing signs of improvement. Not ridiculous like he is ready to go home. But enough to note. 

Jason had an episode when I was on my way there. Cops involved, ambulance ready to transport him. Yea you heard me cops...New nurses, Dr's, and assistants are there. They Don't understand the triggers, don't know what to do... Following protocol stiffly.

I walk in to see Bruce Banner on his bed, tired and crying. Room is a mess. I get him to comply to what they want and take him for a walk. Tell everyone to back down. Talk to my boys in blue, refuse transport, get Jason his meds, feed him and watch him watch television. Rest of the day is uneventful, head home at midnight. I prayed real hard for a calm sleep for Jason and a calm day. He got it. Last night was a good night.

Another person would break down with all this constant trauma. I guess I have that rhino skin. This is just another day in the life.

I'll order my nervous breakdown later w/ a side order of fries.. 

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