Thursday, March 24, 2016

Be The Coffee Bean

Dr Robinson one of my favorite doctors attended Jason in ER. He is working with Dr. Wendy Vargas a Nuero-immunologist who has taken Jason on. She is giving him more treatment for the disease in an effort to send it to hell and keep it there. Aside from his fashion faux pas and the issue of not having his meds on time things are ok. I am patient. I am kind. I offer help even if I repeat myself every shift to different nurses who have no knowledge of what the one before her took notes in my face about. But I am here for help, and so I offer as much as I can.

Assisted in my 2nd lumbar puncture on Jason. It's sick to see water come out of someone's back instead of blood but hey, he needs it, I swallow back bile, it is all good.

There is a story, much like my waxing nightmare, that has circulated the Internet. If it is stolen like mine was I feel for the amazing author that wrote and would gladly give you author props if I knew who you were. Apparently it begins with a girl telling her grandmother how she was cheated on. Grandma proceeds to place carrots, eggs and coffee in water to present a tangible metaphor. After boiling the carrots weaken, and are forever changed. The water hardens the eggs breaking away their most delicate exterior and altering everything it had inside. Then there was coffee.

The coffee bean told the water "fuck you!" And was the only object that changed the water. It grew stronger the more the water tried to change it. While I admit I was once an egg at the beginning of this disease, I needed to be an egg to be strong enough to become coffee.

Anti-NMDA Receptor Encephalitis Jason and I are coffee beans. Say hello to Bustelo you Maldita disease and:
Fuck You!

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