Monday, March 7, 2016

Suffer The Little Children

I have suffered. A lot. I lost so much weight a lot of people don't recognize me. If I were proud of it I would post pictures on Facebook and show it off. But I am not. Constantly being fed stress and uncertainty has taken a toll on me and 115lbs.

Jason slept last night for the whole night Iike an actual human being. This disease losing its footing on my son and now his body is taking over more and more. Rest heals the brain, helps the chemo do its job. Rest restores the body. Up until our visit last week at Columbia Jason had not slept in weeks. Delirium takes hold of you when you don't sleep too much, imagine not at all? We are entering a new phase of this disease and I have to lace up my kicks and get ready for the new normal to take hold for a little while. Like the 7 deadly sins we have these things to go through, in sequence before Jason's disease "Give Us Free".

Jason is cursing- up a storm. Verbally lashing out at anyone withIn ear shot. Thankfully this only started today. Thankfully Sammi did not hear any of it. We are grateful that we are at the part where he is constantly vocalizing but I am heartbroken to know that I still have to suffer more. I passed the physical with Jason, dealing with wrestling with him and him punching and kicking and taking this smaller body to try and control him as well as my bigger body did. Now I have to deal with the psyche part of this test. The one where my son will curse me out and those he loves because the inflammation in his brain has control. This is what Tourrets is like. Hopefully he will pass out of this stage quickly.




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